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GET INVOLVED

Are you

  • A researcher?

  • A patient or disability advocate with good reach to EDS or long Covid communities?

  • A healthcare professional or organisation interested in supporting these groups?

  • Able to help connect us to funding or other support?

Then get in touch at hello.triplehelix@gmail.com or use our 'Contact us' form - we'd love to hear from you!

Or do you yourself have

  • EDS?

  • Long Covid?

  • Neither and wish to participate in the control group of our study?

Then sign up to participate in the survey when it's ready!

Or if you've been affected personally, tell your story on our forum to help others understand why this research is needed.

Help us raise awareness of the study by sharing or donating!

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